Introduction:

Ataxia-telangiectasia disease, usually referred to as AT, is a rare hereditary disease that affects several vital systems in the body: the neurological system, the immune system, the respiratory system, and sometimes the circulatory system.
The disease first appears in childhood and progresses with age. The first signs of the disease usually appear in the second year of life and are manifest as a lack of balance. Due to its rareness, AT is defined as an orphan disease.

This page includes information about AT, as well as information about services for those suffering from AT. Please note that in many places we recommend to check rights and more detailed information in other portals, such as the Children with Special Needs Portal.

Medications and the Healthcare System

Diagnosis and Paramedical Treatments for Children

Specialized Medical Services

  • AT patients are entitled to receive service at a center that specializes in treating the disease.
  • For more information see: Specialized Medical Service.

Drug Payment Ceiling

  • According to the Ministry of Health, AT patients are considered to be chronically ill. They must confirm that they are registered as such by their health plan to avoid paying for medication beyond the monthly payment ceiling defined for chronically ill patients.
  • For more information, see: Medication Payment Ceiling for the Chronically Ill.

Purchase of Rehabilitation Devices

Dental Care

Discount on Health Insurance Fees

  • Patients receiving a General Disability Pension who have no other income, may have minimum health insurance premiums deducted from their disability pension (see: Paying Health Insurance Contributions).
  • If the patient has another income, health insurance fees must be paid from the income and may not be paid from disability pension payments.


Education

  • Recommendations regarding the placement of aa child in the education system are based on a medical examination and a professional opinion from a senior children's neurologist from the National Clinic for AT Patients.

Regular Education System

Integration into the Regular Education System

Special Education

Transportation to a Special Educational Framework

Educational Support for Children who are Homebound

Benefits

Disabled Child Benefit

Mobility Benefit

General Disability Pension

Special Services Benefit

Taxes

Other Benefits

Housing Modifications

  • Parents of a child who has limited mobility or functioning due to illness or damage to the motor system are eligible for financial assistance to perform interior or exterior housing modifications or renovations to improve their child's functioning, mobility and access in, around, and leading up to their residence.
  • For more information, see: Assistance Performing Housing Modifications for People with Limited Mobility.

Employment of a Foreign Worker

Vocational Rehabilitation

  • Adults (over the age of 18), for whom medical disability of 20% or more has been established, are eligible for vocational rehabilitation (suitable professional training), provided they are able to participate in the rehabilitation process and will be able to integrate into the workforce as a regular employee after the training. Referral for this service is performed through the National Insurance Institute's Rehabilitation Division.
  • For more information, see: Vocational Rehabilitation and Educational Assistance for People with Disability.
  • Adults with a severe physical disability, who are unable to integrate into the workforce, may still be included in various projects (such as social groups, supported employment and sheltered employment) that are run through a collaboration of the Ministry of Social Affairs, the National Insurance Institute and other bodies. Referrals are made through regional welfare offices. Click here to learn more.

Services Offered by the Association for Fighting A-T Disease]]

  • The Association for Fighting A-T Disease offers several services:
    1. The National Clinic for AT Patients
      • The clinic brings together professionals and different specialists under one roof in order to save patients from having to run between physicians and multiple institutions, and it provides a professional response to all aspects of the disease.
      • It is located at the Safra Children's Hospital in Tel Hashomer.
    2. Provision of Respiratory Treatment for Every Child with AT:
      • Draining the lungs through respiratory physical therapy is essential for improving the physical condition of children with AT, slowing the progression of the disease and extending the patients' life expectancy.
        It is not included in the healthcare basket and is not funded by any institutional source.
      • The Association for Fighting A-T Disease provides each child patient two treatments with a specially trained respiratory physical therapist per week in the child's home.

Additional Information

Aid organizations

Government agencies

Laws & Regulations

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Credits