Duchenne is a genetic form of muscular dystrophy caused by a lack of the dystrophin protein in the body, which is an important type of muscle protein that helps keep muscle tissue together and preserves muscle cell structure.
Duchenne muscular dystrophy causes a gradual loss of muscle strength and medical problems connected to the heart and lungs.
Medications and the Healthcare System
- Much of the treatment for people with Duchenne is provided by physical and occupational therapists, but other healthcare professionals may also be involved, such as rehabilitation doctors and specialists and brace and orthopedic device specialists.
- Duchenne muscular dystrophy is considered to be a somatic disorder. After diagnosis, paramedical treatment for children may be received.
- Those with Duchenne muscular dystrophy may also be recognized as rehabilitation patients, in which case, they would be entitled to the following services:
- Rehabilitation services as part of hospitalization or in the community.
- Physical therapy according to the limit established by their health plan. For more information see: Physical therapy and hydrotherapy on the Society for Patients Rights in Israel's website.
- Treatment from a home care unit - Home care units provide medical and paramedical services for patients who are home-bound for an extended period of time and cannot receive the services outside the home. Interested patients should contact their health plans for more information.
- For a list of multi-disciplinary treatment centers for children with Duchenne muscular dystrophy see the "Little Steps" website.
Medical and Rehabilitation Equipment
- The Ministry of Health provides assistance to fund rehabilitation and mobility devices. Equipment can be borrowed or loaned from aid organizations. For more information see Medical and Rehabilitation Equipment Acquisition.
- People with Duchenne muscular dystrophy fall under the category of Chronically Ill and they are exempt from paying medications beyond the Medication Payment Ceiling for the Chronically Ill.
Payment Exemptions and Discounts
- People with Duchenne muscular dystrophy who are eligible to receive a General Disability Pension may be entitled to receive a mobility allowance or exempt from payment of services provided by health funds, for more information see:
- People with Duchenne muscular dystrophy may be entitled to the following benefits:
- A General Disability Pension - for more information see Disability Pension and Related Benefits
- A Special Services Benefit (Attendance Allowance) - for more information see Special Services Benefit (Attendance Allowance) and Related Benefits
- Disabled Child Benefit for Children with Degenerative Muscle Disorders - for more information see Disabled Child Benefit and Related Benefits
- Supplement to a Disabled Child Benefit for Children Ventilated with a Tracheostomy
- Personal Nursing Care Benefit for Children and Adults Ventilated with a Tracheostomy
- Mobility Benefit
- Children with special needs can learn in a special education framework or integrate into the regular education system. For more information see Special Education and Integration into Regular Education.
- Children learning in the regular education system may be eligible for a support from a medical aide.
- People with Duchenne muscular dystrophy for whom 90% disability has been established may be entitled to an income tax exemption if they work.
- In certain cases, the person with Duchenne muscular dystrophy or the spouse may be eligible for income tax credit points.
- Parents of a child with Duchenne muscular dystrophy may also be eligible for income tax credit points.
Purchase Tax and Israel Lands Administration Payments
- People with Duchenne muscular dystrophy may be entitled to a Purchase Tax discount.
- People with Duchenne muscular dystrophy who have an established disability rate of 80% may be entitled to a discount on the Israel Lands Administration consent fee.
Municipal Property Tax (Arnona)
- People with Duchenne muscular dystrophy may be entitled to a Municipal Property Tax (Arnona) discount.
- Parents of a child with Duchenne muscular dystrophy may be entitled to a Municipal Property Tax (Arnona) discount.
- People with Duchenne muscular dystrophy may be entitled to various benefits related to housing:
Transportation and Mobility
- People with Duchenne muscular dystrophy may be entitled to various benefits related to transportation and mobility, such as:
- Disabled Parking Permit and Exemption from License Fee
- Marking a Disabled Parking Area Near the Home of a Person with Disabilities
- Exemption from Payment of Hospital Parking Fees
- Public Transportation Discount for Disability Pension Recipients
- Assistance Purchasing Mobility Devices
- Assistance Performing Housing Modifications for People with Limited Mobility
Exemption from National Insurance Institute Payments
- People with Duchenne muscular dystrophy may be entitled to an exemption from paying National Insurance Institute fees.
Discounts on Electricity, Water and Telephone Bills
- People with Duchenne muscular dystrophy may be entitled to the following discounts:
- The National Insurance Institute
- The Ministry of Health
- The Ministry of Finance
- The Ministry of Labor, Social Affairs and Social Services
Laws & Regulations
- The National Insurance Law
- The National Insurance Regulations (Disabled Child)
- The Special Education Law
- The Free Education for Sick Children Law
- Little Steps English website
- Little Steps: Personal information first aid card for emergency situations
- Guides translated into Hebrew by Little Steps:
- Information provided by:
- English translation and maintenance by The Shira Pransky Project.